Wednesday, November 30, 2016

Surgery #2

So, our night before surgery didn't go as planned. Logan woke up at 1 am and decided he would not go back to sleep, which is very unusual for him. Needless to say, mommy and daddy were up as well. By 4am an inconsolable, hungry toddler, yelling through the thin walls of the hotel room, we decided we would just pack up and drive around for 2.5 hours before needing to go to the hospital. Logan, of course, fell asleep while we were driving.

We got up to the hospital at 6:30, we brought him down to the OR prep rooms and got him ready. We were greeted by some of the team that would work on him. The anesthesiologist, the nurses and then the surgeon. We kept Logan occupied with bubbles, then he was given a medication to make him relax, and boy did it. He found a stethoscope, which he ABSOLUTELY needed to have and wouldn't give up. As the medication started to hit him he turned into a pile of mush on my lap, but he continued to put the stethoscope in his ears and take them out. When I stood up to hand him over, he was like a wet noodle. It was actually quite comical. He took his stethoscope into surgery with him. Haha.





Thus began our wait. We were updated at 10:30 that opening his chest cavity was taking longer than anticipated due to scar tissue, and once they were done, they'd begin on the heart. We were finally greeted by the surgeon at 3:00. He didn't give the usual thumbs up with a big smile, so I was immediately nervous. Instead, he calmly said that it was a very difficult surgery, but everything went as planned. We were elated! We shook his hand and thanked him about 2938 times. We went outside of the waiting room to wait for him to be wheeled by. Even though we waited almost 8 hours for his surgery to be over, waiting outside for 15 minutes to see him felt like an eternity. Once he came by we gave him a kiss and rubbed his hands, and then proceeded to take him into the Pediatric Cardiology Intensive Care Unit (PCICU). We were told they'd be about 45 minuets to an hour transferring him and all of his wires and tubes to the new bed. We grabbed all of our stuff and checked into the Ronald McDonald House in the meantime.

Finally, after a really long day we were able to see our baby. He was pink. For the first time, in almost his entire life, he was pink. His lips were pink, his nail beds were pink, his little baby toes were pink. It is incredible. He is intubated, sedated and on pain medications to keep him comfortable. Along with about 28 other medications being pumped into him. While we were there, he began to show signs of instability. His blood pressure was very low, and he was going into heart arrhythmia. More specifically, Ventricular Tachycardia. (Vtach) When this happens, the ventricles are squeezing, but nothing is being circulated. It is a very dangerous arrhythmia to have. So, everyone was on their toes trying to stop the spurts of Vtach and get his blood pressure to increase. It was hard to watch, I was so afraid that the Vtach would last too long and they'd need a crash cart. Luckily, that never happened, and about an hour later they were able to get him stable. He is still having bouts of low blood pressure and arrhythmia, but as of right now, they are not concerned. His heart needs to relearn how to pump properly and efficiently, and sometimes it has a few hiccups along the way. He is peeing, which is always great. At first, there was a large amount of blood in his urine, but now it is beautifully clear. There is no talk of taking him off the ventilator any time soon as they want to keep him stable longer and give his body a chance to rest after his long day.

 LOOK AT THESE PINK FINGERNAIL BEDS!!!! JUST LOOK AT THEM!!! I can't get over it!


So, as of right now, he is stable with a few hiccups, which is to be expected. We will learn more tomorrow as the doctors go through and discuss their plans for him. I am probably forgetting a few things, but I have been up for almost 24 hours and I am about ready to fall over. We want to thank everyone for the support, love and encouragement. The messages, the texts, everything has helped us through our day. We love you all and we are so happy to have such an amazing base of friends and family.

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