Wednesday, April 29, 2015

The beginning

At 20 weeks pregnant we went for the ever exciting anatomy ultrasound. We found out we were having a little boy and we enjoyed seeing him on the screen. The ultrasound technician was amazing, but our son was stubborn and she couldn't get a good view of his heart. She knew that parents to be enjoyed having ultrasounds so instead of trying to get a good picture, we were scheduled to come back in a few weeks. We didn't mind one bit! 

4 weeks later we arrive for our second ultrasound, luckily, our little guy is in a good position to get a few pictures. It was a quick appointment, as we were only there for one purpose. Once we were done we were sent to a patient room, as usual, to wait for the good word that everything was okay. The doctor came in and told us that there was a possibility that our little Logan may have what is called Transposition of the Great Arteries. What this means is that the two main arteries leading to and from the heart are in opposite places and would need to be switched shortly after birth. He said that it wasn't a definite, but just to be sure he wanted us to have an echocardiagram done. We left the office with many unanswered questions, and the possibility of facing a long journey, but we were optimistic. 

After our echocardiagram appointment we waited in the conference room hoping for the best. When we saw the doctor he was very friendly and asked us about ourselves and he discussed why we were there. Then I heard him say the most devastating word, "unfortunately". Unfortunately our baby had many issues with his heart. I was devastated. I tried to hold back my tears and concentrate on what he was explaining to us. Logan not only had what we expected, the Transpostion of the Great Arteries (TGA), but he also had Pulmonic Stenosis, a narrowing of the pulmonary artery, Double Outlet Right Ventricle (DORV), both arteries are coming off of the right ventricle, a hole in his heart, (Ventricular Septal Defect, VSD) common with TGA and DORV. It was hard to hear, and even though my husband and I both have medical backgrounds it was still difficult to comprehend all of the medical jargon thrown our way.  

He explained to us what our upcoming journey may include. Open heart surgery is inevitable, along with many other procedures on his little heart. The Dr. explained that he has a very complex heart and there are many variables that could change the plan of action, nothing would be for sure until after he was born and the cardiac team could get a better look at his heart. We left the appointment completely unsure of what our future has in store for us. 

The picture on the left is of a normal heart, the picture on the right is baby Logan's heart. Or at least an idea of what his heart looks like as of right now.