Thursday, July 16, 2015

Only days away.

Even though we have been counting down for months, it didn't seem real until now. Packing our hospital bags, not knowing how long we will be gone for, wasn't easy. It is all getting so real. We am beyond excited to meet our little guy and to finally have a game plan in place. The wondering and not knowing has been very exhausting.

We go in on the 20th in the morning to start the induction process, I'm a little nervous about it ending in a c-section. Not because I'm afraid of having one, but because if I have to have one, I'd rather have one right off the bat. I don't care how he gets here, I just want to hold him in my arms. We were told at our tour that we will have a room full of people. Specialists, NICU team, medical students, nurses and doctors. Once he is born we will get to see him for a short time, and hopefully hold him, but once they take him away we will have to wait a while until we can go see him. Jake can see him after an hour, and I'll have to wait about 2 hours.

I've gotten a lot of advice from other mothers that have heart babies, and it has been comforting. They don't beat around the bush, they aren't all optimistic and positive. They are realists. which is what I need. I appreciate everyone's kind words but the reality is, is that this is going to be a long, scary road. He is going to have his ups and his downs. We all will. Although heart babies are resilient, the recovery of surgeries can still be rough. I have an amazing husband, who is my rock. Although we are both very strong individuals this will be a test of true strength, in each other and in our marriage. I am confident that we will come out stronger in the end.

I have some information for you, if you've stumbled upon this page because you are experiencing something similar, or if you haven't followed from the beginning, of what his defects are. He has a total of 5 defects, that we know of as of right now.
Double Outlet Right Ventricle (DORV) - http://www.nlm.nih.gov/medlineplus/ency/article/007328.htm
Transpostion of the Great Arteries (TGA) - http://www.cdc.gov/ncbddd/heartdefects/tga.html
Pulmonary Stenosis (PS) - http://www.nlm.nih.gov/medlineplus/ency/article/001096.htm
Ventricular Septal Defect (VSD) - http://www.heart.org/HEARTORG/Conditions/CongenitalHeartDefects/AboutCongenitalHeartDefects/Ventricular-Septal-Defect-VSD_UCM_307041_Article.jsp
Dextrocardia - http://www.nlm.nih.gov/medlineplus/ency/article/007326.htm

Although these defects are common on their own, the combination of them makes for a  very complex case for the cardiologists. We are forever hopeful that Logan is going to be a fighter, he has to be! I will update again once we get the ball rolling on the 20th. See you then!

No comments:

Post a Comment