Today we moved from Syracuse Hospital to Rochesters Childrens Hospital. Logan had issues maintaining his oxygen levels throughout the night and was put back on oxygen and his medications were increased. We were reassured that it was more than likely due to his weight increase and his body adjusting to the medication. Rochester ambulace picked him up around 1pm. They packaged him up in a what looked like a little time capsule, and we were off. We met him in his fancy room at 3:30 and we were told he slept the entire way. They had to do all of their prelimonary testing and admission work, so we watched and waited. He is admitted into the Pediatric Cardiac Intensive Care Unit, aka PCICU. He has his own little "room" in the corner of one big room.
We were introduced to many people, none of whom I can remember now. We were told many times what was going to happen, and what to expect. They are going to open his chest and put in a shunt, bypassing the pulmonary artery. We were told how he would look after surgery, which is on a ventilator, with many tubes and wires. He will have a chest tube to drain any fluids, he will have an IV coming from his neck, and his incision could be left open depending on if the surgeon thinks there is too much swelling. He will have a catheter. He will be sedated and under a paralytic so that he doesnt move, for a day or two during the most crucial time of recovery. Even though we know all of this, it will be hard to see him tomorrow. We were told the surgery would take anywhere from 6-8 hours.
I am sure there is a lot I am forgetting, but today was pretty overwhelming and there was a lot to take in. This hospital is beautiful, especially the childrens ward. We are staying at the Ronald McDonald house located inside the hospital and we have already met a few other "heart" moms. We are literally 60 seconds from Logan if he needs us for anything, or if anything goes awry.
It is comforting knowing that he is in a place specifically designed to deal with cardiac cases. Although we loved syracuse hospital and they are fully capable, we were always associated with having a premature baby, because that is typically what they see. Here, the nurses only deal with cardiac patients and this is second nature to them. He couldnt be in a better place and we couldnt feel any more comfortable about it.
It is getting late, and Im sure there is much more I wanted to say, but I will cut it short. We have a big day tomorrow. I will do my best to update after the surgery. Fingers crossed it all goes well.
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