Wednesday, August 19, 2015

4 weeks

Is how long Logan has been looking at hospital walls. 4 weeks in a hospital bed, 4 weeks of us eating hospital food, 4 weeks of going back and forth from home to the hospital and 4 weeks of waiting.

We can finally see the light at the end. The doctor told me yesterday that she wants us out of here by Friday. His output from his chest tube, which we have been struggling with, was finally under 25. If he can keep it low, his tube will come out. Then all we have to do is work on eating.

They took out his NG tube and are expecting him to eat and gain weight on his own. This puts alot of pressure on him and us. He has a hard time eating and it can be very frustrating. It is amazing, after all he has been through, this is what we are having trouble with. Something as "easy" as eating. He has trouble staying awake to eat, and when he's awake he sometimes coughs because he gets ahead of himself. We have to take our time because he doesn't know how to suck and swallow and breath at the right times. He breathes fast because of his heart issues and it makes it hard for him to catch his breath sometimes. He has come a long way, but it is still a slow process when we feed him. He has to work really hard to eat, which makes him tired, and then he falls asleep. When he had the NG tube, it wasn't such an issue because we knew whatever he didn't eat,  we would just give it to him through the tube..but we don't have that option anymore. The only way to get it into him is for him to eat. It's tough. Who would have thought this would be one of the hardest parts?...

I am so excited to come home, I'm terrified, but excited. I am going to miss our friends we have made at the hospital and their little heart warriors. I am going to miss having a doctor around the corner to answer my questions. But I cannot wait for Corbin and Logan to begin their bond. I cannot wait for the craziness to ensue in our household.

Just a quick shout out to one couple in particular, Trish, her husband Aaron and their heart warrior Zander. We are so happy to have met you and be a part of your journey even though it was only for a short time. It was nice to be able to forget about what we were all going through and visit and laugh with you guys at night before bed. You two are incredible and you inspire me.

We are so thankful to have had such an uneventful recovery, it isn't typical. I can only hope this is how all of his recoveries will be. We were told we will be back in 6-8 months for his next open heart surgery. So, as happy as we are that this is over, before we know it, we will be starting all over again. It's hard to think about. In the meantime, we will give Logan as much love as we possibly can. Every moment with him is especially special.

I will keep you all posted when we are busting out of the joint. Fingers crossed for Friday!

4 comments:

  1. aw he's beautiful so excited for you all keeping fingers, toes and everything else crossed that Friday's your day- I was over to carol's yesterday and got to spend a little time with Corbin in the pool he's a sweetheart- you and Jake will do great - stay strong Logan is amazing

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  2. Logan is such a cute and strong little guy! What an incredible journey and how far you have come. Hope you get to go home Friday! Our Corbin is in surgery right now. It is good to read about your progress and know that we can get through it.

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  4. After reading all your blog i am so moved and may god bless you all family. Im 39 years old in my 34nd week of pregnancy and my baby unfortunately got:
    1. Double Outlet Right Ventricle
    2. Ventricular Septal Defect (away from aorta)
    3. Pulmonary artery stenosis
    4. Left pulmonary artery originates from ascending aorta. I wanna ask you some questions: Will you ignore your first baby after you have your little son? How's the first surgery work? Why your baby need the second surgery? THANK YOU SO MUCH!!

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