Wednesday, August 5, 2015

Adjusting

We are all still adjusting to our new lives as heart parents. Logan has been doing great! He has his ups and downs throughout the day, but he somehow always comes out ahead of the game. He has had some issues with high blood pressure (Hypertension) and the nurses are unsure of why his numbers spike randomly throughout the day, but so far he has been able to calm himself down without any intervention. They are going to try to wean him off of the breathing tube, but in order to do that they first have to wean him down to 40% oxygen air and then wean him completely off the nitrate gas. Nitrate gas helps bind oxygen to his blood cells, so far he has needed a little boost of nitrate in order to keep his O2 saturation's up where they should be.We are hoping that he will be off the breathing tube within the next few days. That is the only thing holding us back from holding him. Once the tube is gone, we can hold him as much as we'd like. I cannot wait to get him back in my arms.  He is a sweaty little boy, just like his big brother. The nurses all comment on how his head will get all sweaty but his body temperature is normal. I have reassured them that I just make sweaty boys apparently.

I came back home today with Corbin. It was probably the second/third hardest thing I have done within the last month.(Handing my child over to a surgeon and birth) I thought it would be easy, but I was a mess. We are still trying to find a balance between both of our children. Corbin did great adjusting to being in a new place at the Ronald McDonald house, but he is so busy, and there wasn't as much for him to do in Rochester as we initially thought. After a few days, he was getting sick of the same old thing. He would whine and cry when we would take him to our room in the Ronald McDonald house. It was hard for Jake and I to divide our time with Logan and Corbin. Only having one vehicle with us made it that much harder and a hospital isn't necessarily a place for a toddler to hang out in for hours at a time. So we decided that we needed to at least try something different and see if it works better. Now I can focus on Corbin at home and Jake can dedicate his time to Logan. We will switch in a few days. It's hard to be away, harder than I ever thought, but Corbin needs us/me too. We both agree that he was ready to come home.

Tomorrow is a new day, Logan is doing great. We can only take it day by day. We are on his time. There will be set backs, we don't know what they will be yet, but they will happen. We can only hope they aren't serious. If they are, we will deal with it and we will help him fight. He has a lot of supporters, and again, we can't thank you all enough for your thoughts and prayers. He's a strong boy and we are all fighting for him.

3 comments:

  1. You are wonderful parents & god will see you through, prayers your way!

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  2. you are doing great Shannon and Jake - starting to look forward to your updates and so glad they continue to be positive - continued prayers for all of you

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  3. You both are doing a great job! Glad to hear things are going good, its a day by day thing but I have confidence its all going to be good. Hugs to you both. And sweet little kisses to Logan

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