Sunday, August 2, 2015

Post-op

Logan has been doing great. He is tolerating everything really well. They took him off of his paralytic yesterday to give his brain a little workout and do a neurological check. He is still sedated but he is able to move. He doesn't move much but he moves his legs and arches his back and tries to move his head, but his breathing tube keeps it to one side. He opens his eyes but the sedation makes his eyes roll around. The doctors are pleased with everything. Besides the balancing of all of his fluids and rates, which is normal, all is well.

It's great that he is doing so good, but he's doing all of this with his chest open. The plans are to close his chest tomorrow afternoon and then we start back at square one. We have to go through everything all over again, finding a new balance, he has to adjust to the new pressure of his chest being closed. So as nice as it is that he is doing well, tomorrow will be a reset. Although we are starting all over again at least with his chest closed we know any progress made will be one step closer to going home.

We became members of the Mended Little Hearts organization upon having a baby with CHD. It is a great organization. They hosted and event last night at the rochester zoo. After the zoo was closed it was reopened to MLH members. Anyone that had a child with CHD was welcome to go at no cost. It was amazing, such a nice thing they do for families and children. We got to see all of the animals and had a great dinner. We also got to connect with other families that have gone through or are going through the same struggles. It was nice. It was nice to be out of the hospital, and did I mention our little buddy came with us to stay? He loved the zoo and all the animals, mostly the ducks and birds, because those are so rare...

This weekend has been boring. Tomorrow is a new day, and a new beginning in our journey. The days following tomorrow will be a test of his strength and how well he will tolerate the new change. I hope how well he is doing now is a prerequisite to how well he will do after tomorrow. Fingers are crossed.

2 comments:

  1. What a great thing to be able to connect with other parents. Its so nice your sharing your journey. Tomorrow will be a new one and my prayers are with you. And again thanks for the updates.

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  2. what a wonderful way you are documenting your little guy and your family's journey - keeping all of you in our thoughts and prayers stay strong

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